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Site title
Spinal Muscular Atrophy (SMA): The Sean W. Venezia Foundation: Funding the Fight Against SMA
Keywords
Spinal Muscular Atrophy, SMA, Neuromuscular Diseases, Neuromuscular Disease, Werdnig-Hoffmann Disease, Infantile SMA
Description
Foundation dedicated to helping fund the fight against Spinal Muscular Atrophy (SMA)
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| smafund.org | IN | A | 207.155.252.14 | 900 | ||
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| smafund.org | IN | NS | 10800 | ns1.cnchost.com | ||
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<title>Spinal Muscular Atrophy (SMA): The Sean W. Venezia Foundation: Funding the Fight Against SMA</title>
<META name="keywords" content="Spinal Muscular Atrophy, SMA, Neuromuscular Diseases, Neuromuscular Disease, Werdnig-Hoffmann Disease, Infantile SMA">
<META name="description" content="Foundation dedicated to helping fund the fight against Spinal Muscular Atrophy (SMA)">
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ul#mainnav { width: 740px; margin: 6px 0px 0px 0px; padding: 4px 0px; list-style: none; background: #0070ba; text-align: center; border-bottom:1px solid #000000; }
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<td width="544"><img src="images/header2.gif"></td>
<td valign="top" align="center" width="196" bgcolor="#ffffff"><br><a href="http://partners.guidestar.org/controller/searchResults.gs?action_donateReport=1&partner=networkforgood&ein=30-0273669"><img src="images/donationlogo.gif" border="0"></a><br><font face="arial" size="1" color="#000000">The Sean W. Venezia Foundation<br>is a non-profit, all-volunteer,<br> 501(c) (3) organization.</font></td>
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<ul id="mainnav">
<li><a href="index.html">Home</a></li>
<li><a href="story.html">Sean's Story</a></li>
<li><a href="mission.html">Our Mission</a></li>
<li><a href="facts.html">Facts on SMA</a></li>
<li><a href="donation.html">Make a Donation</a></li>
<li><a href="contact.html">Contact Us</a></li>
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<font face="Arial, Helvetica, sans-serif" size="4" color="#006699">Helping Fund the Fight Against
Spinal Muscular Atrophy</font><br><br>
<b>The #1 Genetic Killer of Children Under the Age of 2 </b>
<p><a href="facts.html">Spinal Muscular Atrophy</a>, commonly referred to as SMA, is an inherited disease that destroys the spinal cord nerves that control muscle movement, which affects crawling, walking, head and neck control, and even breathing and swallowing.
Although SMA is as common as ALS (Lou Gehrig's Disease), it is not nearly as well-known because many of its victims die so young.</p>
<p>Currently, there is no treatment or cure for SMA. However, its cause is well understood and the "problem" gene has been identified. As a result, a cure could be on the horizon, but <a href="donation.html">money is still needed</a> to fund research and to help families that are currently impacted by this tragic disorder.</p>
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<font face="Arial, Helvetica, sans-serif" size="3" color="#006699">Make Your Online Shopping Count</font><br><br>
<img src="images/igive.gif" align="left" hspace="5">
The next time you shop online with your favorite retailer, you can have a percentage of your purchases donated to: The Sean W. Venezia Foundation.<br><br> Best of all - it's fast, easy, and FREE to do. <a href="igive.html">Learn more</a>.
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<img src="images/walknroll.gif"><br><br>
<b>Sponsor The Venezia Family in this year's Walk-n-Roll to cure SMA.</b><br><br>
If possible, come out and show your support.<br><br>
Where: Details to follow <br>
Be sure to check back soon<br><br>
<b><a href="donation.html">SPONSOR US TODAY!</a></b><br><br>
<b>Sean W. Venezia<br>
9 months on earth. Forever in our hearts.</b><br><br>
<img src="images/seanheadshot.jpg" align="left" hspace="5"> On October 20, 2003. Sean died from complications associated with SMA.<br> View a one-minute clip of Sean's video and get to know a little boy whose very short life was filled with nothing but love. <br>
<!--<a href="sean.wmv">View using Windows Media Player</a><br>-->
<!--<a href="sean.rm">View using Real Player</a>-->
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<div id="footer">COPYRIGHT © 2009. The Sean W. Venezia Foundation, Inc. All Rights Reserved.
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